A special thanks to the driving force behind the Jordana's Rainbows team. These Rainbow Warriors volunteer their time endlessly to make sure all this can be possible.
Jordana loves you!
What’s your nick-name? Stef Baccs, Stef Beccs, Stefanz, Shtefa
What’s the best piece of advice you have ever been given? “Small victories win the war”. Looking at the big picture can feel overwhelming, but when you pick apart your week, your day, your hour and look for small victories, you’ll find them. You’re winning the war. Also my nonna always says to never leave the house without a sandwich and a bottle of water, so there’s that too.
What is something about yourself that makes you proud? I really believe that my calling in life is to help others, which is why I pursued a career as a social worker. Today I am privileged to work in healthcare and help people from all walks of life overcome all sorts of challenges.
Also, I am so proud of the amazing connections we have made through Jordana’s Rainbows. We’ve fundraised more that we ever dreamed we would, but more importantly we are always meeting so many amazing, talented souls ready to drop everything and help us spread rainbow magic. It’s really incredible and I’m so lucky to get to be a part of Jordana’s vision.
How do you find rainbows on a cloudy day? I think of how much my grandparents love me and I know that no matter what is bothering me, I’ll always have their unwavering support. They are my angels here on earth!
What is your secret superpower? I would like to think my superpower is making people laugh. I think laughter is the quickest way to connect people.
Anything you’d like to share? I really love pyjama sets. When I’m wearing a matching set of pyjamas I really feel like I have my life together.
What’s your favourite Jordism? In a world where you can be anyone, be yourself.
What is your signature scent? Blackberry and Bay by Jo Malone
What’s your favourite memory of Jordana? My favourite memory of Jordi was at my daughter's 9th birthday sleep over. I let the girls choose fabric and I made pillowcases for them. Jordana amazed me. She took such pleasure in going through my fabric drawers, watching, and helping sew. She was the only one interested in what I was doing and her joy was palpable. She asked me to teach her to sew and I promised I would. It was only a few months later that she was diagnosed with DIPG and this never happened. So while this is one of my favourite memories, it is also one of my greatest regrets that we never had that opportunity. I look forward to the day when we will sew together again.
What’s your nick-name? My nickname growing up was Sammy. Now I only let my father call me that, lol. Currently, I would say my nickname is Momma. My daughter and her friends call me that, and I secretly love this term of endearment.
What gives you all the feels? Seeing Jordana's legacy ( Jordana's Rainbows) spread kindness and rainbows worldwide. I know Jordi is loving this kindness movement. Great things are done by a series of small things brought together. Vincent Van Gogh
What’s the best piece of advice you have ever been given? Keep Promises To Yourself. It is worth the work to keep promises to yourself, and be a person of your word. Change your habits, keep your commitments, work though the exhaustion. You will like and respect yourself more, and so will others. "If you constantly make and break promises to yourself, you're not making promises at all. You're talking." Rachel Hollis
What is your secret superpower? I look for my angels and seek out kindness. I believe now more than ever we need to change the narrative in today's world to always choose kind. Choose kind....it's really that simple. Jordi understood this better than anyone, and if I look for her she always lets me know she is never far.
What is your favourite movie quote? My favourite movie quote comes from Diana Prince's last lines in Wonderwoman. "I've touched the darkness that lives in between the light. Seen the worst of this world, and the best. Seen the terrible things men do to each other in the name of hatred, and the lengths they'll go to for love. Now I know. Only love can save this world. So I stay. I fight, and I give... for the world I know can be. This is my mission, now. Forever."
What’s your favourite animal? My rescue dog Hugh! He joined our family shortly after Jordi passed. And while it is a long story, I believe she played a heavenly role in him becoming a part of our family. My sweet Jordi sent me the perfect furry companion when I needed him most.
Do you dream in colour? Always! Especially in the colours of the rainbow, but only in the correct colour order of course. Jordi and I both emphasized the importance of putting rainbows in order (something we laughed about). The seven colors of the rainbow are not only a thing of great beauty but also have Biblical significance. I pray everyone dreams in colour.
Anything you’d like to share? Jordi's bright light touched so many during her short time here on Earth. Mine included. She is the most exceptional child I have ever met and I love her like my own. Her huge, electric smile, and ability to see the good in everyone are just two of her amazing traits. Jordana dedicated her life to kindness. I will forever strive to emulate her goodness, and live by her example.
First word that comes to your mind. Rainbowlicious - This is our made up adjective that we (Alison, Jordana, and I) use a lot. It will always be one of my favourite words.
What’s your favourite Jordism? "God is my Shepherd and makes everything beautiful like rainbows". Jordana wrote this in her beautiful rainbow cursive to be incorporated into her communion. I loved her faithfulness, and joyful spirit. Even at such a young age, she truly had a servant's heart. Knowing and loving her, will always be one of my greatest gifts.
What is your signature scent? My signature scent is Jo Malone Wild Bluebell. I will always be an English girl at heart!
What gives you all the feels? A great movie with a story that mirrors something that happened in my life. Go watch “Inventing the Abbotts” and if that doesn’t put you through all ranges of emotions, I don’t know what will! Also, ice cream.
What’s the best piece of advice you have ever been given? From my mother. When I have an idea or something I want to do, to just do it and figure it out as you go. It will work or it won’t. Enjoy it if it does, and learn from it if it doesn’t.
What is something about yourself that makes you proud? That I haven’t given up. Even when I have every right and reason to, I just don’t. I can’t explain it, I don’t understand it, but I’m so glad that I have it in me.
How do you find rainbows on a cloudy day? Music, always music. I have a playlist in my phone that has been relatively unchanged for 10 years that hits every part of my mind in the best way.
What is your secret superpower? Finding the best ice cream wherever I go. It’s really more of a curse than a power. I wish this was a joke.
What is your favourite movie quote? “It’s not about how hard you hit, it’s about how hard you can get hit and keep moving forward.”
What’s your favourite animal? Cats.
What do you do when no ones looking? Oh boy… I dance far more frequently than anyone knows. Completely abstract and semi-wild without a hint of dignity. So, shhhhh, don’t tell anyone.
Do you dream in colour? Always. Weirdly vibrant colours, actually.
Anything you’d like to share? About the dreams? Or like sharing ice cream? Cause I’ll tell you about the dreams.
First word that comes to your mind. Hope.
What’s your favourite Jordism? “Easy peasy, lemon squeezy.” It’s the confident optimism, y’know?
What is your signature scent? What does Tiger Tail ice cream smell like? That.
Sondra Manchisi - Owner of Arti & Mestieri, Jordana’s Fairy God Mother
What’s your favourite memory of Jordana? My Favourite memory is when I took Jordana to do her nails for her communion and she told me she only wore “Bubbly Bath, OPI” polish.
What’s your nick-name? Songe
What gives you all the feels? Music
What’s the best piece of advice you have ever been given? I’m told often DON’T EVER CHANGE… and I like hearing that
What is something about yourself that makes you proud? The way my girls turned out
How do you find rainbows on a cloudy day? I think of my friendships and that makes me happy
What is your secret superpower? Laughter
What’s your favourite animal? Monkey
What do you do when no ones looking? Put liquor in my coffee
Anything you’d like to share? I want a tummy tuck
First word that comes to your mind. Rhubarb. It’s my favourite word, I think its funny.
What’s your favourite Jordism? That she called me her ‘Fairy Godmother’.
What is your signature scent? MUSK
Eva Avramis - Manager, Gift & Estate Planning, SickKids Foundation
What’s your nick-name? Eve!
What gives you all the feels? Puppies, they are a blessing. A great movie. Helping someone overcome a tough time in their lives and spending quality time with my family and friends.
What’s the best piece of advice you have ever been given? Follow your passion. It will lead you to your purpose. Laughter is the best medicine.
What is something about yourself that makes you proud? My children. My volunteer work and career at SickKids.
How do you find rainbows on a cloudy day? I focus on the things I am grateful for including small things like a great cup of coffee.
What is your secret superpower? My Intuition and ability to understand people.
What is your favourite movie quote? “If you look for it. I’ve got a sneaky feeling you’ll’ find that love actually is all around.”
What’s your favourite animal? In the domestic world a dog, in the wild, a black jaguar!
What do you do when no ones looking? Crank the music and sing my heart out.
Do you dream in colour? Yes, I do! Vibrant and vivid colours.
Anything you’d like to share? Gratitude. I met Jordana for a brief moment back in October 2015 and I thank her and her family for caring so deeply and spreading love and kindness, our world needs more of this.
First word that comes to your mind. Beautiful.
What’s your favourite Jordism? “In a world where you can be anybody be yourself” Being authentic, is key.
What is your signature scent? Luxurious Coco Mademoiselle